Iowa Cancer Registry

  • About
    • About the Registry
    • Reporting Cancer in Iowa
  • Cancer Data
    • Cancer in Iowa Reports
    • Cancer Maps
      • Iowa Cancer Maps
    • Cancer Data Tools
  • Research
    • Accessing Registry Data for Research
    • Tissue Repository
  • Health Care Providers
    • Reportable Cancers
    • Meaningful Use
    • Electronic Pathology Reporting (Epath)
    • Reporting Forms
  • Registrars
    • COVID-19 Reporting Requirements
    • Training & Education
    • Reportability Requirements
    • Manuals
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  • ICAN
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Data Collection

Cancer patient data are collected from hospitals, pathology laboratories, cancer treatment centers, dermatology clinics and Iowa death certificates. The ICR also collects data from targeted physicians who send their pathology specimens to out-of-state laboratories.

Hospitals with cancer programs in Iowa and in neighboring states submit their cancer data directly to the ICR. The ICR also has data exchange agreements with other states. Data are submitted to the SEER Program bi-annually. Iowa data are submitted to the North American Association of Central Cancer Registries (NAACCR) for Cancer in North America (CINA). Iowa data are also submitted internationally for Cancer Incidence in 5 Continents, published by the International Association of Cancer Registries (IARC).

Data collected include patient information, demographics, a description of the cancer, extent of disease, information on first course of therapy, follow-up data and other data items that provide assistance in managing and maintaining cancer registry operations. The ICR follows patients from diagnosis to produce survival figures and to aid in research studies.

Related Pages

  • About the Registry
    • Reporting Cancer in Iowa
      • Reporting Requirements
      • Data Collection
      • Confidentiality
      • HIPAA and Data Security

Latest News

  • State Health Registry of Iowa issues Cancer in Iowa 2022 report, urges return to cancer screenings
  • State Health Registry of Iowa issues Cancer in Iowa 2021 report, highlights racial disparities
  • State Health Registry of Iowa issues Cancer in Iowa 2020 report, highlights ovarian cancer
  • State Health Registry of Iowa issues Cancer in Iowa 2019 report, highlights HPV-related cancers
  • Obesity-related cancer highlights 2018 Cancer in Iowa report

Iowa Cancer Registry - State Health Registry of Iowa - 2600 UCC - The University of Iowa - Iowa City, IA 52242 | (319) 335-8609

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