Confidentiality of data is extremely important to the operation and maintenance of the Registry. The following are critical elements of the Registry’s comprehensive confidentiality policies and procedures that relate to research uses, reporting and release of cancer data.
Confidentiality policies, pledges and procedures are required in all phases of Registry operation in order to:
- Protect the privacy of the individual cancer patient;
- Protect the privacy of the facilities reporting the case;
- Protect the privacy of the physician responsible for the care of the cancer patient; and
- Provide public assurance that the data will not be abused.