Application and Review Process
Investigators and others who wish to use Registry data for research purposes must complete an application, which includes but is not limited to, a description of the proposed study, justification of the necessity of the research, assurances of upholding confidentiality of the data, and specifics about the proposed project. Upon completion of the Iowa Cancer Registry research data request application, we will contact you to set up a meeting to discuss your project, your data request, and the review and approval process.
The application review process varies depending on the nature of the project and data requested. Applications are reviewed by a committee made up of several Iowa Cancer Registry staff members. Review and approval of the project depends on demonstration of scientific and technical merit of the study, justification for the need for any confidential data (if requested), IRB review and approval (if applicable), adequate provisions to address the confidentiality and security of the data (formalized in a Data Use Agreement), adequate resources and timeline to conduct the research, and credentials of the researcher.
Publications and Acknowledgement of the Iowa Cancer Registry
Researchers who are submitting manuscripts, abstracts, or presentations based on research that included Iowa Cancer Registry data should submit the work to the Registry for advance review.
Why do we review your research?
The purpose of the Iowa Cancer Registry review of your intended publication is to confirm that:
- No potentially identifying data are published or presented. This includes suppressing cell counts less than 5, in accordance with Iowa Cancer Registry policy.
- The Iowa Cancer Registry is acknowledged as a data contributor. This acknowledgement should state:
“The Iowa Cancer Registry contributed data for this project. The Iowa Cancer Registry has been funded in whole or in part with Federal funds from the National Cancer Institute, National Institutes of Health, Department of Health and Human Services, under Contract No. HHSN261201800012I, with additional support from the University of Iowa and the State of Iowa.”
Dr. Sarah Nash
Director of Research, Iowa Cancer Registry